WEBVTT NOTE language:en-US NOTE Confidence: 0.880362331867218 00:00:11.080 --> 00:00:15.330 I started dial say August of 2022 they put me NOTE Confidence: 0.880362331867218 00:00:15.425 --> 00:00:20.053 on the machine I fall asleep and then they waking NOTE Confidence: 0.880362331867218 00:00:20.148 --> 00:00:23.360 me up saying it's time to go home. NOTE Confidence: 0.776068925857544 00:00:24.640 --> 00:00:26.240 This is being in vain I guess. NOTE Confidence: 0.9778599739074707 00:00:26.480 --> 00:00:26.640 I. NOTE Confidence: 0.9024127125740051 00:00:26.640 --> 00:00:29.014 Know you're not going to be young forever, but you NOTE Confidence: 0.9024127125740051 00:00:29.062 --> 00:00:31.199 don't want your health to fall off like that. NOTE Confidence: 0.7882760167121887 00:00:33.520 --> 00:00:37.300 My name is Jane Patterson and I live in at NOTE Confidence: 0.7882760167121887 00:00:37.390 --> 00:00:38.560 Staunton, VA. NOTE Confidence: 0.8733585476875305 00:00:40.920 --> 00:00:44.405 Kidney disease doesn't pick favourites, but if you were to NOTE Confidence: 0.8733585476875305 00:00:44.465 --> 00:00:47.950 look across the population in America, if you're older, if NOTE Confidence: 0.8733585476875305 00:00:48.010 --> 00:00:51.375 you're non white, if you're poor, if you're Medicaid and NOTE Confidence: 0.8733585476875305 00:00:51.435 --> 00:00:54.440 Medicare, that means you're both older and poorer. NOTE Confidence: 0.963566780090332 00:00:54.640 --> 00:00:57.640 You tend to have higher rates of kidney disease. NOTE Confidence: 0.9386902451515198 00:00:59.520 --> 00:01:02.744 Patients who are most likely to suffer from chronic kidney NOTE Confidence: 0.9386902451515198 00:01:02.800 --> 00:01:06.079 disease are those who've had multiple things leading to it. NOTE Confidence: 0.9521018266677856 00:01:06.280 --> 00:01:08.546 So they are those who have not just high blood NOTE Confidence: 0.9521018266677856 00:01:08.595 --> 00:01:10.960 pressure or just diabetes, they often have both. NOTE Confidence: 0.9638363718986511 00:01:14.600 --> 00:01:16.880 I've lived here for 66 years. NOTE Confidence: 0.9275280237197876 00:01:18.280 --> 00:01:23.084 My past health issues, I've had high blood pressure since NOTE Confidence: 0.9275280237197876 00:01:23.169 --> 00:01:26.372 I was 18 and then as I got older other NOTE Confidence: 0.9275280237197876 00:01:26.456 --> 00:01:28.479 stuff started happening. NOTE Confidence: 0.8897647857666016 00:01:28.920 --> 00:01:36.775 I have arthritis in both knees, high cholesterol, sugar, diabetes NOTE Confidence: 0.8897647857666016 00:01:36.896 --> 00:01:40.280 and then the kidney failure. NOTE Confidence: 0.9078556895256042 00:01:43.000 --> 00:01:46.207 Unfortunately, we know that Black individuals are four times more NOTE Confidence: 0.9078556895256042 00:01:46.256 --> 00:01:48.970 likely to be affected by chronic kidney disease and NSH NOTE Confidence: 0.9078556895256042 00:01:49.019 --> 00:01:49.760 kidney disease. NOTE Confidence: 0.9316335916519165 00:01:49.960 --> 00:01:52.970 And why that is the case is is complicated and NOTE Confidence: 0.9316335916519165 00:01:53.036 --> 00:01:57.159 not related to their race alone, but rather social determinants NOTE Confidence: 0.9316335916519165 00:01:57.225 --> 00:01:57.879 of health. NOTE Confidence: 0.8819374442100525 00:01:58.040 --> 00:02:01.037 So for example, what is their access to healthcare, what NOTE Confidence: 0.8819374442100525 00:02:01.091 --> 00:02:04.410 is their access to preventative and primary care, their access NOTE Confidence: 0.8819374442100525 00:02:04.464 --> 00:02:07.890 to healthy foods, their environmental exposures that they may or NOTE Confidence: 0.8819374442100525 00:02:07.944 --> 00:02:08.639 may not have. NOTE Confidence: 0.9387682676315308 00:02:08.880 --> 00:02:11.338 So I think there's a lot of factors there that NOTE Confidence: 0.9387682676315308 00:02:11.391 --> 00:02:14.437 are contributing to this disparity and who is impacted by NOTE Confidence: 0.9387682676315308 00:02:14.490 --> 00:02:15.720 chronic kidney disease. NOTE Confidence: 0.8468481302261353 00:02:18.440 --> 00:02:22.040 I worked third shift for 22 1/2 years. NOTE Confidence: 0.8413116335868835 00:02:22.160 --> 00:02:24.640 I worked from 10:30 to 7:00. NOTE Confidence: 0.9406611919403076 00:02:25.080 --> 00:02:27.462 So when I got off, I would go to the NOTE Confidence: 0.9406611919403076 00:02:27.528 --> 00:02:31.498 grocery store, come home, sleep, get back up, cook sometime, NOTE Confidence: 0.9406611919403076 00:02:31.564 --> 00:02:32.160 not cook. NOTE Confidence: 0.9322749972343445 00:02:32.840 --> 00:02:36.240 My husband had high blood pressure and sugar. NOTE Confidence: 0.9117299318313599 00:02:36.480 --> 00:02:38.824 He had both of them at the same time and NOTE Confidence: 0.9117299318313599 00:02:38.882 --> 00:02:41.695 as time went on, his kidneys started to fail and NOTE Confidence: 0.9117299318313599 00:02:41.754 --> 00:02:44.040 then he had to start going to dialysis. NOTE Confidence: 0.9701712131500244 00:02:45.520 --> 00:02:48.734 I was working seven days a week and taking care NOTE Confidence: 0.9701712131500244 00:02:48.802 --> 00:02:49.759 of my husband. NOTE Confidence: 0.920479416847229 00:02:50.960 --> 00:02:53.791 I had a busy schedule and then I still had NOTE Confidence: 0.920479416847229 00:02:53.859 --> 00:02:55.679 to take care of myself too. NOTE Confidence: 0.9615671038627625 00:03:00.440 --> 00:03:02.868 At the time, I was so busy that I had NOTE Confidence: 0.9615671038627625 00:03:02.933 --> 00:03:04.640 to eat a lot of fast food. NOTE Confidence: 0.9318904876708984 00:03:07.720 --> 00:03:11.236 My primary care doctor sent me to the kidney doctor NOTE Confidence: 0.9318904876708984 00:03:11.305 --> 00:03:14.959 because I kept swelling and she couldn't get my blood NOTE Confidence: 0.9318904876708984 00:03:15.027 --> 00:03:16.199 pressure in line. NOTE Confidence: 0.9573367834091187 00:03:16.760 --> 00:03:18.868 So that's when she said that I need to go NOTE Confidence: 0.9573367834091187 00:03:18.920 --> 00:03:20.000 to the kidney doctor. NOTE Confidence: 0.9195585250854492 00:03:20.120 --> 00:03:23.840 And we fought it, but I think it was about NOTE Confidence: 0.9195585250854492 00:03:23.929 --> 00:03:28.093 three years and then he said that my levels was NOTE Confidence: 0.9195585250854492 00:03:28.181 --> 00:03:32.168 dropping and then he finally said I had to go NOTE Confidence: 0.9195585250854492 00:03:32.256 --> 00:03:33.320 on dialysis. NOTE Confidence: 0.7164582014083862 00:03:35.360 --> 00:03:38.480 I have edema, defeat and legs so they swell. NOTE Confidence: 0.9593293070793152 00:03:38.600 --> 00:03:41.120 So that's why I had to quit working. NOTE Confidence: 0.938007652759552 00:03:42.240 --> 00:03:44.859 What I'm doing three days a week is I'm coming NOTE Confidence: 0.938007652759552 00:03:44.916 --> 00:03:45.600 to dialysis. NOTE Confidence: 0.8785493969917297 00:03:46.160 --> 00:03:48.400 Dialysis to me is a part time job. NOTE Confidence: 0.9195874929428101 00:03:48.960 --> 00:03:52.549 I know on dialysis days there isn't much that I NOTE Confidence: 0.9195874929428101 00:03:52.625 --> 00:03:53.159 can do. NOTE Confidence: 0.9772629737854004 00:03:55.200 --> 00:03:58.880 I'm not able to do anything. NOTE Confidence: 0.9099899530410767 00:03:58.880 --> 00:04:02.355 I could say anything on those days except go home, NOTE Confidence: 0.9099899530410767 00:04:02.425 --> 00:04:06.039 warm my food, get something to drink, eat and sleep. NOTE Confidence: 0.9183141589164734 00:04:06.800 --> 00:04:10.433 So once I get my sleep in, it's like I'm NOTE Confidence: 0.9183141589164734 00:04:10.524 --> 00:04:12.160 rejuvenated again. NOTE Confidence: 0.9694987535476685 00:04:16.480 --> 00:04:19.578 I feel not 100%, but a whole lot better than NOTE Confidence: 0.9694987535476685 00:04:19.648 --> 00:04:23.310 when I started because when I started I could barely NOTE Confidence: 0.9694987535476685 00:04:23.380 --> 00:04:25.000 move, walk or anything. NOTE Confidence: 0.908455491065979 00:04:27.040 --> 00:04:31.130 Within four months being on dialysis, I was feeling a NOTE Confidence: 0.908455491065979 00:04:31.207 --> 00:04:32.519 whole lot better. NOTE Confidence: 0.865670382976532 00:04:33.080 --> 00:04:36.329 Dialysis is going to help me live longer because I NOTE Confidence: 0.865670382976532 00:04:36.394 --> 00:04:40.424 have nieces, nephews, great nieces and nephews and great great NOTE Confidence: 0.865670382976532 00:04:40.489 --> 00:04:42.959 nieces and nephews that I want to see.